Making a Difference for Patients:

It’s Up to U

At Ultragenyx, we strive to incorporate patient and family voices into everything we do. Watch our video celebrating how U motivate and inspire us every day.

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Latest Blog Post

Rare & Prepared: Emergency Planning for Individuals with Complex Healthcare Needs

According to the Federal Emergency Management Agency (FEMA), nearly half of U.S. adults do not have the resources and plans in place in the event of an emergency.1 Preparing for…

Your Voice Matters: We are Listening

Marah

A Sibling’s Journey

Franco

Raising a child with CTD

Michelle and Jake

Managing LC-FAOD Together

Braylee

Raising a child with LC-FAOD

Helen

An MPS VII Parent

Cheryl

Living with XLH

Tasia

Living with LC-FAOD

Dan

Living with TIO

David

Living with XLH

Eileen

Raising a Child with LC-FAOD

OTC

Ornithine Transcarbamylase Deficiency

GSDIa

Glycogen Storage Disease
Type Ia

Wilson Disease

Wilson Disease

GSDIII

Glycogen Storage Disease
Type III

Angelman Syndrome

Angelman Syndrome

Click here to learn more about Ultragenyx’s response to the evolving COVID-19 pandemic.