Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

Loading Events

Events Search and Views Navigation

Event Views Navigation

July 2020

Rare Family Day Webinar

July 17 @ 11:00 am - 1:00 pm

Ultragenyx will host a virtual webinar for Rare Family Day to honor our commitment to listen, learn, and provide support and education based on the needs of the rare community.

Find out more »

Living Rare, Living Stronger NORD Patient & Family Forum

July 18 - July 19

Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases and physicians and medical students with…

Find out more »

2020 International Metabolic Conference

July 24 - July 26

The 2020 International Metabolic Conference sponsored by Ultragenyx Pharmaceutical will be free of charge for parents, affected individuals, family members, caregivers and friends. Professionals are also invited to attend for…

Find out more »

August 2020

Our Odyssey NYC Meet-Up

August 13
New York, NY

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

Find out more »

September 2020

Newborn Screening Awareness Month

September 1

In September, organizations across the country raise awareness about the importance of screening newborns for potential illnesses or genetic disorders.

Find out more »

Association for Glycogen Storage Disease Patient/Family/Medical Conference

September 11 - September 12
Cleveland, OH

The Association for Glycogen Storage Disease holds a family/medical conference each year for those affected with GSD, their families, and medical professionals involved in treatment or research of any type…

Find out more »

ASBMR 2020 Annual Meeting

September 11 - September 14
Seattle, WA

Join thousands of bone and mineral scientists for four days packed with networking and educational opportunities, all under one roof at the Palais des congrès de Montréal. With more than…

Find out more »

Global Genes LIVE! A RARE Patient Advocacy (un)Summit

September 14 - September 25

This two-week event will provide members of the rare disease community, stakeholders, and allies with opportunities to connect and engage with each other through interactive activities paired with educational programming.…

Find out more »

12th Annual Rare Disease Scientific Workshop

September 15
Washington, D.C.

The EveryLife Foundation for Rare Diseases will convene its 12th Annual Rare Disease Scientific Workshop to facilitate and help guide improvements in the development process for rare disease treatments. The…

Find out more »

2020 PCORI Annual Meeting

September 16 - September 17
Arlington, VA

At this year’s Patient-Centered Outcomes Research Institute (PCORI) Annual Meeting, members of the healthcare community will come together for updates on how scientists, patients, caregivers, clinicians, payers, and others are…

Find out more »
+ Export Events