2023 OIFE Annual General MeetingStockhome, Sweden
The OIFE Annual General Meeting (AGM) will be held in Stockholm Sweden from June 10-11, 2023. All organizations are invited to attend and to speak at the annual general meeting, but only ordinary (European) member organizations have a vote.
Worldwide CDKL5 Awareness Day
The month of June is meaningful to the CDKL5 community. Every year in June, the CDKL5 community works to educate and raise awareness about the disorder.
XLH Awareness Day
June 23 is X-linked hypophosphatemia (XLH) Awareness Day. Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong.
PPMD’S 2023 Annual Conference Dallas, TXScottsdale, AZ
The Parent Project Muscular Dystrophy (PPMD) will host the 2023 Annual Conference from June 29 - July 2. The conference brings together families, physicians, researchers, caregivers, industry partners and those living with Duchenne and Becker to learn the latest progress in the fight to end Duchenne.