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February 2020

EURORDIS Black Pearl Awards

February 18
Brussels, Belgium

The EURORDIS Black Pearl Awards is an annual event held in Brussels to recognize the outstanding achievements and exceptional work of people making a difference for the rare disease community.…

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EURORDIS Round Table of Companies

February 19
Brussels, Belgium

The EURORDIS Round Table of Companies (ERTC) fosters an educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases. Since its inception 20 years ago, EURORDIS has…

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Rare Disease Week on Capitol Hill 2020

February 25 - February 28
Washington, D.C.

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique…

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Patient Group Leader Workshop

February 25
Washington, D.C.

This workshop, for patient organization leaders, will give you a chance to explore resources designed to educate your disease communities about cell and gene medicine.

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Rare Disease Day

February 29

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers…

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Organization for Rare Diseases India (ORDI) Racefor7

February 29 - June 30

Racefor7 is a 7000-meter walk/run for the cause of over 350 million patients with rare diseases. The number 7 symbolizes the 7000 rare diseases with 7000 people walking/running for 7000…

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March 2020

2020 Annual Ataxia Conference

March 6 - March 7
Denver, CO

As interest from the pharmaceutical industry in developing drugs to treat Ataxia continues to grow, we at the National Ataxia Foundation believe that collaboration among researchers, clinicians, pharmaceutical companies, and…

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2020 MDA Clinical & Scientific Conference

March 21 - March 25
Orlando, FL

2020 marks the 70th anniversary of the Muscular Dystrophy Association (MDA), the umbrella association transforming the lives of people affected by muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related neuromuscular…

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ENDO 2020

March 28 - March 31
San Francisco, CA

ENDO, hosted by the Endocrine Society, is the place where leading experts, researchers, and the most respected clinicians in the field will converge to share the latest findings in hormone…

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April 2020

Patient Organizations: Introduction to Drug Law and Regulation

April 15 - April 16
Washington, D.C.

Join the Food and Drug Law Institute (FDLI) to learn the essentials of drug law and how to engage with the FDA to better support your organization’s advocacy efforts. Explore…

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