Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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March 2019

ENDO 2019

March 23 - March 26
New Orleans, LA

ENDO, hosted by the Endocrine Society, is the world’s largest event for presenting and obtaining the latest in endocrine science and medicine. With an extensive program covering a broad array…

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62nd Annual Ataxia Conference 2019

March 29 - March 30
Las Vegas, NV

The Annual Ataxia Conference (AAC) is the largest gathering of those affected by all forms of hereditary and sporadic Ataxia in the world. At AAC, attendees will have two days…

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RARE on the Road Session #1

March 30
Boston, MA

RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. These regional events provide patients and…

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April 2019

CISCRP’s AWARE for All – Baltimore

April 9
Baltimore, MD

On April 9, 2019 in Baltimore, MD, local community members, patients, and research professionals will come together to learn about clinical research, get free health screenings, and hear from physician…

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Patient Organizations: Introduction to Drug Law and Regulation

April 11 - April 12
Washington, D.C.

Join the Food and Drug Law Institute (FDLI) to learn the essentials of drug law and how to engage with the FDA to better support your organization’s advocacy efforts. For…

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Rare Family Day

April 13
Novato, CA

Rare Family Day 2019 will be held to honor patients with rare diseases. Please join us for a day of food, games, activities and live music. You’ll have the opportunity…

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2019 MDA Clinical & Scientific Conference

April 13 - April 17
Orlando, FL

2019 will be an exciting year for the Muscular Dystrophy Association! They will converge their long-standing Clinical and Scientific conferences into an inaugural combined annual meeting, which will leverage MDA’s…

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Bay Area FSHD Family Day Conference

April 28
Stanford, CA

Co-organized by the FSH Society and John Day, MD, PhD, and his team at the Stanford FSHD Research Center. Join patients, families, researchers, and clinicians for an opportunity to learn…

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May 2019

RARE on the Road Session #2

May 4
Birmingham, AL

RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. These regional events provide patients and…

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2019 Patient Advocacy Certificate Training (PACT)

May 7 - May 9
Sioux Falls, SD

A partnership between Sanford Research and Professional Patient Advocates in Life Sciences (PPALS) this event is a one-of-a-kind opportunity to learn the dos and don’ts of the professional patient advocacy…

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