Role of Patient Advocacy
We support the vital work of patient organizations.
We educate by sharing information about diseases and their impact
We listen to the needs and views of patient communities to guide our work.
We partner with patient organizations to support patients and caregivers.
Meet the Advocacy Team
The Ultragenyx advocacy team works with patient advocacy groups to understand and represent the views of those living with rare diseases. They strive to provide valuable information, educational materials and resources to the communities we serve. Your input also helps guide our clinical development programs.
Together we share a common commitment of improving the lives of everyone affected by rare diseases.