Kim Mooney, MS, CGC

By April 4, 2016

I began my career as a genetic counselor, helping people understand their medical history and guiding them to make informed healthcare decisions. I realized from this experience that I wanted to provide hope and support to those facing difficult diagnoses. I subsequently became a study coordinator at the University of California, San Francisco (UCSF), where I managed clinical trials for people with rare genetic disorders. This experience introduced me to the world of patient advocacy and led to my current role at Ultragenyx.

As part of the patient advocacy team, I have the privilege of meeting and interacting with patients and advocacy groups from all over the world. My goal is to provide education, empowerment and support to patients living with rare diseases.