Role of Patient Advocacy

Ultragenyx Patient Advocacy

The advocacy team works with patient organizations to understand and represent the views of patients.

We strive to provide valuable information, educational materials and resources to the communities we serve. Your input also helps guide our company’s clinical development programs.

Together we share a common commitment of improving the lives of everyone affected by rare diseases.

Patient Advocacy in Action

This summer we hosted a Rare Family Day webinar. Check out the recording to hear from some incredible advocates!


Recognizing the ACD Walk for Strength

Ultragenyx Patient Day

Becky’s conference room dedication

Behind the scenes of Michelle and Jake’s patient journey

Noah’s conference room dedication

Global Genes Booth

Greeting community members at our exhibit booth during the 2019 Global Genes Summit

Surveys from our Advocacy Communications Feedback

Surveys from our Advocacy Communications Feedback Corner during Rare Family Day 2019

Three women next to each other

Coming together with advocates for the 2016 RARE Patient Advocacy Summit