Ultragenyx Share Your Rare Journey

Share Your Rare Journey

Choosing to tell your story is a powerful way to advocate for yourself. Use this checklist to help you connect, educate and inspire others to take action.

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Ultragenyx Dos And Donts

Communicating with Healthcare Providers

Get the most from your visits with healthcare providers by using this simple list of Dos and Don’ts.

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8 Common Principles to Assist with the Transition of Care

The Child Neurology Foundation developed the 8 Common Principles toolkit to help individuals with neurological disorders start the transition to adulthood. It also has great tips for those affected by other rare diseases.

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