Ultragenyx Patient Advocacy
Rare and UltraRare Disease
“My condition did not limit me prior to the diagnosis, and I was determined that it would never hold me back.”
“My biggest challenge is slowly, but surely, letting my teenager take over his own care. I don’t know what the future will bring, but it is my duty to help him be independent.”
Ultragenyx created this website and its content with input from patients, caregivers, and advocates
Stay up to date with new patient stories, resources, advocacy events, and research opportunities!
Sign Me Up for our mailing list
© 2022 Ultragenyx Pharmaceutical Inc. | MRCM-UGNX-00036 September 2022