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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

If you would like to have your event added to the list, please contact [email protected]

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Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

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Rare Experiences
- Experiences
Rare Journey Resources
Understanding Drug Development
Events Calendar
Ultragenyx Research
- Conditions We Study
Ultragenyx Advocacy
- Our Advocacy Team
Join Our Mailing List
Tell Us What You Think!
Contact Us

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