Ultragenyx Patient Advocacy

Rare and UltraRare Disease

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Events Calendar

Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

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Calendar of Events

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Externally led Patient Focused Drug Development (PFDD) Meeting on Cerebral Creatine Deficiency Syndromes (CCDS)

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Rare Liver Disease Month

Rare Liver Disease Month

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