Calendar of Events
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Rare Disease Day
Rare Disease Day takes place on the last day of February every year. The main objective of the day is to raise awareness among decisionmakers and the general public about rare diseases and their impact on the lives of people affected. Learn more
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MitoAction FAOD Monthly Support Call
Join MitoAction and call host, FAOD Mom Stephanie Harry, on the second Thursday of each month for a support call for families affected by fatty acid oxidation disorders (FAOD). This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAOD. Register
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2022 MDA Clinical & Scientific Conference
The 2022 MDA Virtual Clinical & Scientific Conference will take place March 13-16, in a hybrid environment, which will include scheduled live-broadcast sessions, on-demand videos, networking sessions, exhibits, and poster sessions. Learn more
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Raleigh Run for Rare
Raleigh Run for Rare
Join the National MPS Society at Dorothea Dix Park on March 26th for the Raleigh Run for Rare! This event will feature a 5K run, 1 mile walk, and post-run family picnic at Harvey Hill. Register
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