Loading view.
XLH Day
Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong.
Ultragenyx Patient Advocacy
Rare and UltraRare Disease
Events Calendar
Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!
Footer
Ultragenyx created this website and its content with input from patients, caregivers, and advocates
