Events Calendar

A comprehensive annual, international conference focused entirely on Duchenne. Learn more

June 23 is X-linked hypophosphatemia (XLH) Awareness Day. Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong. Learn more

More details coming soon. Learn more

More details coming soon. Learn more

The 2022 OIF National Conference will be held virtually during the weekend of July 9, 2022. More details to come! Learn more

Join the MAGIC Foundation for an educational experience for parents of children living with an endocrine disorder. World renowned speakers from across the globe will present on physical health, mental […]

Join MitoAction and the International Network for Fatty Acid Oxidation Research and Management (INFORM) for the 3rd Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) held in Pittsburgh, […]

Save the date for the National MPS Society’s 36th Annual Family Conference. More details to come! Learn more

The Nashville Rock and Roll 5K Run and 1 Mile Walk will take place on Saturday, August 6 as a part of the National MPS Society’s Annual Family Conference! Transportation […]

Join the National MPS Society for the first annual Long Beach Sprint to Save event! This 5K run and 1 mile walk will be held at Shoreline Aquatic Park on […]

During the third week of September, the Mito community comes together to raise awareness for Mitochondrial Disease Awareness Week. Thousands of families face the reality of living with mitochondrial disease. […]

The 2022 PCORI Annual Meeting will feature keynotes, plenaries, and breakout sessions that highlight a range of timely and important topics around patient-centered research. Learn more