Events Calendar

The Penn Medicine Orphan Disease Center (ODC) will host the 9th Annual Million Dollar Bike Ride on Saturday, June 11, 2022, to raise money for rare disease research. Learn more and register

More details coming soon. Learn more

Each June, the CDKL5 community works to educate and raise awareness about the disorder. June has special meaning to the CDKL5 community, and June 17 is Worldwide CDKL5 Awareness Day. Learn more

The DIA 2022 Global Annual Meeting brings together thousands of innovators from around the globe to discuss updates in the ever-changing field of life sciences. Learn more

A comprehensive annual, international conference focused entirely on Duchenne. Learn more

June 23 is X-linked hypophosphatemia (XLH) Awareness Day. Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong. Learn more

More details coming soon. Learn more

More details coming soon. Learn more

The 2022 OIF National Conference will be held virtually during the weekend of July 9, 2022. More details to come! Learn more

Join the MAGIC Foundation for an educational experience for parents of children living with an endocrine disorder. World renowned speakers from across the globe will present on physical health, mental health, insurance, genetics, education issues, and so much more! Learn more

Join MitoAction and the International Network for Fatty Acid Oxidation Research and Management (INFORM) for the 3rd Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) held in Pittsburgh, PA on July 22, 23, & 24, 2022. In partnership with Dr. Jerry Vockley and INFORM, MitoAction will assemble leading experts to present to families, […]

Save the date for the National MPS Society’s 36th Annual Family Conference. More details to come! Learn more