Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

Loading Events

Events Search and Views Navigation

Event Views Navigation

June 2020

CISCRP Medical Heroes Appreciation 5K Run & Walk

June 15
Washington, D.C.

The Medical Heroes Appreciation 5K Run & Walk will take place in Washington, D.C. to celebrate study volunteers who give the gift of participation in clinical research. This event will…

Find out more »

Worldwide CDKL5 Awareness Day

June 17

Each June, we work to educate and raise awareness about CDKL5 Deficiency Disorder. June has special meaning to the CDKL5 community, and June 17th is Worldwide CDKL5 Awareness Day.

Find out more »

RARE on the Road

June 23 - June 24

RARE on the Road is a rare disease leadership series hosted by Global Genes and the EveryLife Foundation for Rare Diseases, providing critical education and insight into the rare disease…

Find out more »

XLH Awareness Day

June 23

June 23 is the second annual X-linked Hypophosphatemia (XLH) Awareness Day. Each year, the XLH community works to educate the general public about the condition and celebrate those who are…

Find out more »

Our Odyssey Boston Meet-Up

June 25
Boston, MA

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

Find out more »

FSHD Connect Classroom

June 27

FSHD Connect Classroom is a one-day online conference, which will take the place of the biennial FSHD Connect Conference. This event will feature stellar presentations by medical and research superstars,…

Find out more »

Our Odyssey Virtual Meet-Ups

June 28 - August 30

As a young adult, do you feel like your health needs are often overlooked by the health community? Join an Our Odyssey virtual meet-up to connect with other young adults…

Find out more »

July 2020

Rare Family Day Webinar

July 17 @ 11:00 am - 1:00 pm

Ultragenyx will host a virtual webinar for Rare Family Day to honor our commitment to listen, learn, and provide support and education based on the needs of the rare community.

Find out more »

Living Rare, Living Stronger NORD Patient & Family Forum

July 18 - July 19

Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases and physicians and medical students with…

Find out more »

2020 International Metabolic Conference

July 24 - July 26

The 2020 International Metabolic Conference sponsored by Ultragenyx Pharmaceutical will be free of charge for parents, affected individuals, family members, caregivers and friends. Professionals are also invited to attend for…

Find out more »
+ Export Events