Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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February 2020

Rare Disease Day

February 29

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers…

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March 2020

2020 Annual Ataxia Conference

March 6 - March 7
Denver, CO

As interest from the pharmaceutical industry in developing drugs to treat Ataxia continues to grow, we at the National Ataxia Foundation believe that collaboration among researchers, clinicians, pharmaceutical companies, and…

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2020 MDA Clinical & Scientific Conference

March 21 - March 25
Orlando, FL

2020 marks the 70th anniversary of the Muscular Dystrophy Association (MDA), the umbrella association transforming the lives of people affected by muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related neuromuscular…

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ENDO 2020

March 28 - March 31
San Francisco, CA

ENDO, hosted by the Endocrine Society, is the place where leading experts, researchers, and the most respected clinicians in the field will converge to share the latest findings in hormone…

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April 2020

Patient Organizations: Introduction to Drug Law and Regulation

April 15 - April 16
Washington, D.C.

Join the Food and Drug Law Institute (FDLI) to learn the essentials of drug law and how to engage with the FDA to better support your organization’s advocacy efforts. Explore…

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Our Odyssey NYC Meet-Up

April 16
New York, NY

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

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Wilson Disease Association Conference: Trends and Innovations

April 25
Denver, CO

The 2020 WDA patient and family conference will be held in Downtown Denver.

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May 2020

Our Odyssey D.C. Meet-Up

May 3
Washington, D.C.

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

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2020 Patient Advocacy Certificate Training (PACT)

May 11 - May 14
Sioux Falls, SD

A partnership between Sanford Research and Professional Patient Advocates in Life Sciences (PPALS) this event is a one-of-a-kind opportunity to learn the dos and don’ts of the professional patient advocacy…

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International MPS Awareness Day

May 15

Every year on May 15, the mucopolysaccharidosis (MPS) and mucolipidosis (ML) community comes together to: Honor everyone in the MPS and ML community Recognize all the children and adults diagnosed…

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