Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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October 2021

Rare Disease Scientific Workshop

October 20

Details coming soon!

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November 2021

2021 PCORI Annual Meeting

November 17 - November 19

The 2021 PCORI Annual Meeting will feature keynotes, plenaries, and breakout sessions that highlight a range of timely and important topics around patient-centered research.

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December 2021

International Day of Persons with Disabilities

December 3

The United Nations’ day of international observance aims to promote an understanding of disability issues and mobilize support for the dignity, rights, and well-being of persons with disabilities. The term…

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10th Anniversary RareVoice Awards

December 7

Details coming soon!

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EveryLife Foundation Community Congress Annual Meeting

December 8

The Community Congress is a membership-based program dedicated to bringing patient organizations, industry leaders, and other rare disease stakeholders together. The Congress is a strategic advisory council, providing advice and…

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