Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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September 2020

RARE Patient Advocacy Summit

September 21 - September 23
San Diego, CA

Global Genes’ RARE Patient Advocacy Summit brings patients, caregivers and advocates together to share best practices, create important introductions, and help catalyze powerful collaborations. It offers many unique opportunities to…

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Our Odyssey Global Genes Summit Meet-Up

September 23
San Diego, CA

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

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October 2020

Rare Diseases and Orphan Products Breakthrough Summit

October 8 - October 9
Washington, D.C.

NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over 20 speakers from the FDA, participation from…

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Our Odyssey D.C. Meet-Up

October 11
Washington, D.C.

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

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MPS Race for a Cure

October 11
Napa, CA

The National MPS Society will host a timed 5K Run and Memorial Walk. Registration for the race begins at 7:30am. Start time is 10:00 am for the 5k run. The…

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Rare New England Conference 2020

October 24
Hartford, CT

Save the date for the Rare New England Conference 2020! This year’s theme is “Improving Health Care Experiences in the Rare Disease Community,” and topics will include rare disease advocacy,…

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November 2020

Our Odyssey Philly Meet-Up

November 10
Philadelphia, PA

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

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December 2020

International Day of Persons with Disabilities

December 3

The United Nations’ day of international observance aims to promote an understanding of disability issues and mobilize support for the dignity, rights, and well-being of persons with disabilities. The term…

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Our Odyssey Boston Holiday Meet-Up

December 10
Boston, MA

As a young adult, do you feel like your health needs are often overlooked by the health community? Come meet, network, and connect with other young adults who are facing…

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