XLH Awareness Day
June 23 is X-linked hypophosphatemia (XLH) Awareness Day. Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong. Learn more
Virtual Capitol Hill Visits with Senators and Representatives
More details coming soon. Learn more
Third Annual Cross Country Challenge Kickoff
More details coming soon. Learn more
2022 OIF National Conference
The 2022 OIF National Conference will be held virtually during the weekend of July 9, 2022. More details to come! Learn more
The MAGIC Foundation’s 28th Annual Convention
Lombard, IL Lombard, ILJoin the MAGIC Foundation for an educational experience for parents of children living with an endocrine disorder. World renowned speakers from across the globe will present on physical health, mental health, insurance, genetics, education issues, and so much more! Learn more
International Metabolic Conference
Join MitoAction and the International Network for Fatty Acid Oxidation Research and Management (INFORM) for the 3rd Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) held in Pittsburgh, PA on July 22, 23, & 24, 2022. In partnership with Dr. Jerry Vockley and INFORM, MitoAction will assemble leading experts to present to families, […]
National MPS Society 36th Annual Family Conference
Save the date for the National MPS Society’s 36th Annual Family Conference. More details to come! Learn more
Nashville Rock and Roll 5K Run and 1 Mile Walk
Nashville, TNThe Nashville Rock and Roll 5K Run and 1 Mile Walk will take place on Saturday, August 6 as a part of the National MPS Society’s Annual Family Conference! Transportation will be provided to and from the event, which will be held at Centennial Park. Check back for more information regarding departure times. Learn more
Long Beach Sprint to Save 5K Run and 1 Mile Walk
Long Beach, CAJoin the National MPS Society for the first annual Long Beach Sprint to Save event! This 5K run and 1 mile walk will be held at Shoreline Aquatic Park on September 10. Learn more and register
Mitochondrial Disease Awareness Week
During the third week of September, the Mito community comes together to raise awareness for Mitochondrial Disease Awareness Week. Thousands of families face the reality of living with mitochondrial disease. During Awareness Week, MitoAction and Mito families do their part to educate others about mitochondrial disease. Awareness is important year-round but highlighting these issues during […]
2022 PCORI Annual Meeting
The 2022 PCORI Annual Meeting will feature keynotes, plenaries, and breakout sessions that highlight a range of timely and important topics around patient-centered research. Learn more
MitoAction FAOD Monthly Support Call
Join MitoAction and call host, FAOD Mom Stephanie Harry, on the second Thursday of each month for a support call for families affected by fatty acid oxidation disorders (FAOD). This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAOD. Register
