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Events Calendar

Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

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Event Type

Awareness Day

Patient Conference

Scientific Conference

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Event Topic

Advocacy/Policy

Awareness

Drug Development

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Conditions

Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

Creatine Transporter Deficiency (CTD)

Duchenne Muscular Dystrophy (DMD)

Glycogen Storage Disease Type Ia (GSDIa)

Glycogen Storage Disease Type III (GSDIII)

Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)

Mucopolysaccharidosis Type VII (MPS VII)

Osteogenesis Imperfecta (OI)

Wilson Disease (WD)

X-linked Hypophosphatemia (XLH)

Latest Past Events

Dec 8 2022

December 8, 2022

MitoAction FAOD Monthly Support Call

Join MitoAction and call host, FAOD Mom Stephanie Harry, on the second Thursday of each month for a support call for families affected by fatty acid oxidation disorders (FAOD). This […]

Dec 3 2022

December 3, 2022

International Day of Persons with Disabilities

The United Nations’ day of international observance aims to promote an understanding of disability issues and mobilize support for the dignity, rights, and well-being of persons with disabilities. The term […]

Dec 2 2022

December 2, 2022 - December 3, 2022

FAST’s 15th Annual Global Science Summit & Gala

Foundation for Angelman Syndrome Therapeutics (FAST). For more information

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