Events Calendar

The Annual Ataxia Conference (AAC) is the largest gathering of those affected by all forms of hereditary and sporadic Ataxia in the world. At AAC, attendees will have two days…

RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. These regional events provide patients and…

On April 9, 2019 in Baltimore, MD, local community members, patients, and research professionals will come together to learn about clinical research, get free health screenings, and hear from physician…

Join the Food and Drug Law Institute (FDLI) to learn the essentials of drug law and how to engage with the FDA to better support your organization’s advocacy efforts. For…

Rare Family Day 2019 will be held to honor patients with rare diseases. Please join us for a day of food, games, activities and live music. You’ll have the opportunity…

2019 will be an exciting year for the Muscular Dystrophy Association! They will converge their long-standing Clinical and Scientific conferences into an inaugural combined annual meeting, which will leverage MDA’s…

Co-organized by the FSH Society and John Day, MD, PhD, and his team at the Stanford FSHD Research Center. Join patients, families, researchers, and clinicians for an opportunity to learn…

RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. These regional events provide patients and…