Ultragenyx Patient Advocacy
Rare and UltraRare Disease
Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!
The month of June is meaningful to the CDKL5 community. Every year in June, the CDKL5 community works to educate and raise awareness about the disorder.
Ultragenyx created this website and its content with input from patients, caregivers, and advocates
