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Events Calendar

Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

If you would like to have your event added to the list, please contact [email protected].

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Conditions

Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

Creatine Transporter Deficiency (CTD)

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Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)

Mucopolysaccharidosis Type VII (MPS VII)

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Wilson Disease (WD)

X-linked Hypophosphatemia (XLH)

All Day

September 18, 2022 - September 24, 2022

Mitochondrial Disease Awareness Week

During the third week of September, the Mito community comes together to raise awareness for Mitochondrial Disease Awareness Week. Thousands of families face the reality of living with mitochondrial disease. […]

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Rare Experiences
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- Our Advocacy Team
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