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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

If you would like to have your event added to the list, please contact [email protected].

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Conditions

Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

Creatine Transporter Deficiency (CTD)

Duchenne Muscular Dystrophy (DMD)

Glycogen Storage Disease Type Ia (GSDIa)

Glycogen Storage Disease Type III (GSDIII)

Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)

Mucopolysaccharidosis Type VII (MPS VII)

Osteogenesis Imperfecta (OI)

Wilson Disease (WD)

X-linked Hypophosphatemia (XLH)

Ongoing

DIA 2022 Global Annual Meeting

June 19, 2022 @ 8:00 am - June 23, 2022 @ 5:00 pm

DIA 2022 Global Annual Meeting

The DIA 2022 Global Annual Meeting brings together thousands of innovators from around the globe to discuss updates in the ever-changing field of life sciences. Learn more

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Rare Experiences
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Rare Journey Resources
Understanding Drug Development
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- Conditions We Study
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- Our Advocacy Team
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Contact Us

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