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Rare and UltraRare Disease

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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

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RARE Drug Development Symposium

Global Genes 2022 RARE Drug Development Symposium

The RARE Drug Development Symposium, in partnership with the Orphan Disease Center of the University of Pennsylvania, is designed to connect, educate, and inspire rare disease participants, whether they’re beginning […]

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