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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

If you would like to have your event added to the list, please contact [email protected].

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Conditions

Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

Creatine Transporter Deficiency (CTD)

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Glycogen Storage Disease Type III (GSDIII)

Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)

Mucopolysaccharidosis Type VII (MPS VII)

Osteogenesis Imperfecta (OI)

Wilson Disease (WD)

X-linked Hypophosphatemia (XLH)

All Day

May 27, 2022 - May 29, 2022

CureDuchenne Futures Conference

Orlando, FL

This conference focuses on bringing education, resources, and connection to the Duchenne community in a family-friendly environment. Learn more and register

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Rare Experiences
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Understanding Drug Development
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- Conditions We Study
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- Our Advocacy Team
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Contact Us

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