Ultragenyx Patient Advocacy

Rare and UltraRare Disease

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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

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EveryLife Foundation Community Congress Annual Meeting

Washington, D.C. DC

The Community Congress is a membership-based program dedicated to bringing patient organizations, industry leaders, and other rare disease stakeholders together. The Congress is a strategic advisory council, providing advice and […]

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