Ultragenyx Patient Advocacy

Rare and UltraRare Disease

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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

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Newborn Screening Bootcamp

Sacramento, CA Sacramento

The EveryLife Foundation for Rare Diseases and Expecting Health at Genetic Alliance invite you to a virtual five-part training series designed to educate and engage newborn screening stakeholders. Throughout the […]

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