Ultragenyx Patient Advocacy
Rare and UltraRare Disease
Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!
Rare Disease Legislative Advocates (RDLA) staff will organize virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team will also help prepare […]
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