Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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The Great Plains Rare Disease Summit

May 11

CoRDS Registry

Mark your calendars for the 2019 rare disease community event. At this event, people living with a rare disease and/or their caregivers will be able to:

  • Meet with scientists researching rare disease
  • Attend speaker panels with presentations followed by question and answer sessions
  • Visit with local organizations and vendors that support the rare disease community

Join us for a day of learning, networking and most importantly, connecting.

Learn More

Details

Date:
May 11

Venue

Sioux Falls, SD