Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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RARE on the Road

June 23 - June 24

RARE on the Road

RARE on the Road is a rare disease leadership series hosted by Global Genes and the EveryLife Foundation for Rare Diseases, providing critical education and insight into the rare disease community. Due to the COVID-19 pandemic, this year’s event will be virtual.

These events are geared toward rare disease community members who want to tell their rare disease story, make an impact in the lives of others, and connect locally with fellow rare disease community members. Register for Part I, Part II or both!

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June 23
June 24