Event dates may change due to the evolving COVID-19 pandemic. We encourage you to check specific event websites for the most up-to-date status.

If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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Living Rare, Living Stronger NORD Patient & Family Forum

July 18 - July 20

Living Rare Living Stronger

NORD is headed to Cleveland, Ohio for our 2020 Living Rare, Living Stronger Patient and Family Forum. What’s even more exciting–the Rare Impact Awards, included in this event, will be hosted at the Rock & Roll Hall of Fame!

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July 18
July 20


Cleveland, OH