Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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Bay Area FSHD Family Day Conference

April 28

Bay Area FSHD Family Day Conference

Co-organized by the FSH Society and John Day, MD, PhD, and his team at the Stanford FSHD Research Center. Join patients, families, researchers, and clinicians for an opportunity to learn about advances in our understanding of FSH muscular dystrophy, new drugs in development, and what you can do to help speed up progress toward treatments and a cure. Expert clinicians will discuss best practices for managing symptoms. Refreshments served. RSVP required.

Register Here

Details

Date:
April 28

Venue

Stanford, CA