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12th Annual Rare Disease Scientific Workshop

September 15, 2020

11th Annual Rare Disease Scientific Workshop

The EveryLife Foundation for Rare Diseases will convene its 12th Annual Rare Disease Scientific Workshop to facilitate and help guide improvements in the development process for rare disease treatments. The development of treatments for rare diseases can be challenging given the complexities and uncertainties regarding these diseases. Industry, academia, the Food & Drug Administration, the National Institutes of Health, and other stakeholders must work together to develop strategies, policies and guidance to help improve the predictability and efficiency of the development process to enable more approvals for rare disease treatments.

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September 15, 2020


Washington, D.C.