Tasia

Tasia lives with an LC-FAOD. As an infant, she was diagnosed with an enlarged heart and was immediately tested for multiple diseases. Shortly after, she was diagnosed with very long chain acyl-co A deficiency (VLCAD), a type of LC-FAOD. Tasia’s transitions into adolescence and adulthood were challenging because she experienced more symptoms as she got older. She admits that she was in denial at first, but she has learned to accept her condition and not let it define her. Tasia is proud to be a beacon of hope for young people living with a rare disease.