The future may be uncertain, but it can still be filled with hope. There are ways you can plan for your individual future and contribute to a better and brighter future for the whole rare community, including those yet to come. Below, learn about opportunities to plan, participate, and make an impact for future generations.
Rare Experiences
Read the rare experiences of remarkable advocates and the researchers, renegades, and the ready to roar out loud.
Regina
Creatine Transporter Deficiency (CTD)“It takes a village to raise a kid, and in my experience with rare disease, it’s actually taken several villages.”
