Transitioning to adulthood is an exciting and challenging time. As someone living with a rare disease, you may look forward to greater independence but also be anxious about navigating daily life by yourself. Questions that go through your mind may include:
- How can I ensure I continue to get appropriate medical care?
- How does health insurance work?
- What steps should I take to live independently?
The Global Genes toolkit, “Gaining Independence as a Young Adult with a Rare Disease,” covers these topics and more. I hope you find this resource helpful as you look ahead to life as a young adult.
Founder and CEO