Caring for someone with a rare disease can be an around-the-clock commitment, leaving with little time to attend to your own needs. However, your well-being is critical for your sake and that of your loved one. It is also important to know that you are not alone.
Caregiver Action Network has a resource dedicated exclusively to caregivers of people living with rare diseases. Here you can find tips for coping with various challenges, read personal stories and insights, and interact with other caregivers through an online forum.
For more information visit: Caring for Rare Disease Caregivers