Kim Mooney, MS, CGC
Associate Director, Patient Advocacy, Medical Affairs
Ultragenyx Pharmaceutical Inc.
I began my career as a genetic counselor, helping people understand their medical history and guiding them to make informed healthcare decisions. I realized from this experience that I wanted to provide hope and support to those facing difficult diagnoses. I subsequently became a study coordinator at the University of California, San Francisco (UCSF), where I managed clinical trials for people with rare genetic disorders. This experience introduced me to the world of patient advocacy and led to my current role at Ultragenyx. As part of the patient advocacy team, I have the privilege of meeting and interacting with patients and advocacy groups from all over the world. My goal is to provide education, empowerment and support to patients living with rare diseases.
Tom Pulles, M.D.
Head of Advocacy, Europe
Ultragenyx Europe GmbH, Basel, Switzerland
After receiving my medical degree (MD), I decided to take a different path than many physicians and became a general practitioner in the Royal Netherlands Navy. After that time, I chose not to work as a clinician/specialist in a hospital because I wanted to help as many patients as possible. I found the ability to do this by joining the biopharmaceutical industry with different positions and roles in medical affairs, working to develop and bring new therapies to many patients. Through the years I have had the opportunity and pleasure to meet physicians and patients worldwide and gain a better understanding of their real needs and challenges. Now at Ultragenyx, I am responsible and fully committed to Patient Advocacy in Europe. The possibility of working so closely with rare disease patients and their caregivers and family enlightens my medical heart and makes me even more passionate about serving those in need and helping them lead a better life.