Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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February 2018

14th Annual WORLDSymposium

February 5 - February 9
San Diego CA United States

WORLDSymposium is a multidisciplinary forum presenting the latest information from basic science, translational research, and clinical trials for lysosomal diseases. It is designed for basic, translational and clinical researchers, patient…

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Council of Patient Advocates (COPA)™ Workshop: WORLD Translation and WORLD Activation at WORLDSymposium

February 5
San Diego CA United States

During WORLDSymposium, Lysosomal Disease Network’s (LDN) Council of Patient Advocates (COPA) will meet for this two-part workshop. In the first session of the morning, WORLD Translation is an opportunity to…

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EURORDIS Black Pearl Awards

February 20
Brussels Belgium

This is an annual event held to recognize the outstanding achievements and exceptional work of people making a difference for the rare disease community. Taking place in February to mark…

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2018 Epilepsy Foundation Pipeline Conference & Community Day

February 22 - February 24
San Francisco CA United States

Every two years, the Epilepsy Foundation holds its Pipeline Conference to bring together decision-makers with a stake in the field of epilepsy treatment, therapeutic innovation, and product development. This exciting…

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RDLA Rare Disease Week on Capitol Hill

February 25 - March 1
Washington DC United States

Rare Disease Week on Capitol Hill is an opportunity for you to help educate the new Congress about the impact of rare disease and shape healthcare policy to better serve…

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International Rare Disease Day

February 28

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers…

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March 2018

2018 MDA Clinical Conference

March 11 - March 14
Arlington VA United States

The 2018 MDA Clinical Conference will bring together clinical professionals from around the country who are working every day to save and improve the lives of individuals living with muscular…

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ENDO 2018

March 17 - March 20
Chicago IL United States

ENDO, hosted by the Endocrine Society, is the world’s largest event for presenting and obtaining the latest in endocrine science and medicine. With an extensive program covering a broad array…

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April 2018

61st Annual Ataxia Conference 2018

April 5 - April 6
Philadelphia PA United States

The Annual Ataxia Conference is the largest gathering of those affected by all forms of hereditary and sporadic Ataxia in the world. At AAC, attendees will have two days to…

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Ultragenyx Patient Day

April 7 @ 11:00 am - 4:00 pm
Novato CA United States

Ultragenyx and Audentes celebrate Patient Day 2018 to honor patients with rare diseases. Please join us for a superhero-themed day of food, games, activities and live music. You’ll have the…

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