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April 2018

61st Annual Ataxia Conference 2018

April 5 - April 6
Philadelphia PA United States

The Annual Ataxia Conference is the largest gathering of those affected by all forms of hereditary and sporadic Ataxia in the world. At AAC, attendees will have two days to…

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Ultragenyx Patient Day

April 7 @ 11:00 am - 4:00 pm
Novato CA United States

Ultragenyx and Audentes celebrate Patient Day 2018 to honor patients with rare diseases. Please join us for a superhero-themed day of food, games, activities and live music. You’ll have the…

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2018 National Walk for Epilepsy

April 14
Washington DC United States

The money raised from the National Walk for Epilepsy helps the Foundation provide services for people living with epilepsy, provide awareness programs for proper seizure recognition and first aid, provide…

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April 19
Washington DC United States

The AWARE for All Clinical Research Education Day is a free, educational event that serves as a forum for open dialogue between patients, members of the public, and health and…

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Dystonia Awareness Week

April 29 - May 7

Supported by The Dystonia Society, the purpose of Dystonia Awareness Week is to promote awareness of dystonia, undertake research, and support welfare initiatives. The Dystonia Society organizes various activities throughout…

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May 2018

Pediatric Endocrine Society Annual Meeting

May 5 - May 8
Toronto Canada

The Pediatric Endocrine Society (PES) Annual Meeting is a leading event for academic pediatrics and child health research. The mission of PES is to advance and promote the endocrine health…

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2018 Patient Advocacy Certificate Training (PACT)

May 9 - May 11
Sioux Falls, SD United States

A partnership between Sanford Research and Professional Patient Advocates in Life Sciences (PPALS) this event is a one-of-a-kind opportunity to learn the dos and don’ts of the professional patient advocacy…

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9th European Conference on Rare Diseases & Orphan Products

May 10 - May 12
Vienna Austria

“Rare Diseases 360° – collaborative strategies to leave no-one behind” is the overarching theme of the European Conference on Rare Diseases & Orphan Products (ECRD) 2018. This event facilitates policy…

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International MPS Awareness Day

May 15

May 15th is International MPS Awareness Day, a day that honors everyone in the MPS Community including patients, families, caregivers, researchers and physicians. Click here for more information

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June 2018

RARE on the Road Session #1

June 4
Houston TX United States

RARE on the Road will bring critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. These regional events provide patients…

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