Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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RARE on the Road Session #1

March 30, 2019

RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive and engaging environment. These regional events provide patients and advocates the opportunity to engage more broadly with other rare advocates and benefit from connecting with other disease advocacy leaders. RARE on the Road is working to help advocates learn, grow and become independent activists for their rare disease community.

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Details

Date:
March 30, 2019

Venue

Boston, MA