Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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Miami FSHD Family Day Conference

February 23, 2019

Miami FSHD Family Day Conference

Join the Facioscapulohumeral Dystrophy (FSHD) Society for the first-ever FSHD Family Day Conference in Florida, locally hosted by Mario Saporta, MD, PhD, MBA, and his team at the Neuromuscular Division of the University of Miami Miller School of Medicine. This is a half-day immersion to learn from leading clinical experts and hear about exciting advances toward treatments. You will meet patients and families throughout the region and brainstorm about strengthening the FSHD community in south Florida.

Register here

Details

Date:
February 23, 2019

Venue

Miami, FL