Below are some upcoming events that may be of interest. If you would like to have your event added to the list, please contact patientadvocacy@ultragenyx.com.

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CCDS Awareness Day

February 1, 2019

CCDS Awareness Day

February 1 is Cerebral Creatine Deficiency Syndrome Awareness Day! To find out how you can celebrate this day and help spread awareness of CCDS in your community, visit: https://creatineinfo.org/

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Date:
February 1, 2019